Mapping the Future of Assistive Technology for Adults

Mapping the Future of Assistive Technology for Adults For many disabled adults, finding the right assistive technology has never been as simple as walking into a store, talking with a provider, or clicking “best option” online. Instead, it often looks like this: Hours of research.Conflicting recommendations.Products that sound promising but fail in real life.Insurance barriers.Tools […]

Recognition Isn’t Enough: Why Cerebral Palsy Deserves Real Investment

Recognition Isn’t Enough Why Cerebral Palsy Deserves Real Investment Shouka Tavakolian When Representative George Latimer honored Dr. Kathleen Friel on the House floor, it was more than just a formal gesture. It felt personal and meaningful. For many in the cerebral palsy community, it was a moment when their experiences were recognized with dignity and […]

Cerebral Palsy Research Program Authorization Act

Cerebral Palsy Research Program Authorization Act Turning Recognition into Responsibility: The Push for H.R. 2178 The Moment: Recognition on the House Floor When Representative George Latimer honored Dr. Kathleen Friel on the House floor, it was more than a formal gesture—it was a rare moment of visibility for the adult cerebral palsy community. Dr. Friel, […]

Lived Experience in the Lab: Why Your Voice is Vital for CP Genetics Research

Lived Experience in the Lab: Why Your Voice is Vital for CP Genetics Research For many in the cerebral palsy community, medical research has historically felt like something that happens to us rather than with us. At Cerebral Palsy Positive, we are committed to changing that narrative. We believe that clinical data is only one half of the story—the […]

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