Most are Adults

Most of the more than 17 million people in the world living with Cerebral Palsy (CP) are adults. However, research focuses largely on children. Changing this narrative is the perfect reason for all to join My Cerebral Palsy. Lending your voice to lifespan research will help balance the scale and provide answers! By joining, you will:

  • participate in studies and forums.
  • be educated and no longer willing to accept “because you have CP” as the generic answer.

As with everyone, aging decreases our flexibility. The difference is that because muscle tightness is a major CP characteristic, we get a double dose. Because of that, there’s an impact on our GFMCS score which makes the changes harder to take.

Sharing your experiences will enlighten medical professionals. Letting them know that CP requires maintenance treatment to enable 17 million plus (and growing) persons to continue living their best lives.

 
Most of the 17 million living with CP are adults.
17 million worldwide living with cerebral palsy

Cerebral Palsy Resource

The Cerebral Palsy Foundation has published the Cerebral Palsy Resource.  A digital resource that provides reliable information and resources to help navigate this journey more easily.  One dedicated area of the publication is Research and Clinical Trials.  Each month, there’s a new list of trials.

Some post-pediatric focused topics covered are:

  • How to set up an accessible and comfortable home office
  • Sleep and painCerebral Palsy Resource, CP resource, research
  • ADA’s 30th anniversary
  • My journey of finding accessible apartments

 

More Resources