Most are Adults

Most of the more than 17 million people in the world living with Cerebral Palsy (CP) are adults. However, research focuses largely on children. Changing this narrative is the perfect reason for all to join My Cerebral Palsy. Lending your voice to lifespan research will help balance the scale and provide answers! By joining, you will:

  • participate in studies and forums.
  • be educated and no longer willing to accept “because you have CP” as the answer.

As with everyone, aging decreases our flexibility. The difference is that because muscle tightness is a major CP characteristic, we get a double dose. Because of that, there’s an impact on our GFMCS score which makes the changes harder to take.

Sharing your experiences will enlighten medical professionals. Letting them know that CP requires maintenance treatment to enable 17 million plus (and growing) persons to continue living their best lives.

Most of the 17 million living with CP are adults.
17 million worldwide living with cerebral palsy

My Cerebral Palsy

MyCerebralPalsy.org (MyCP) is a resource for the cerebral palsy community to participate in CP research and in discussions about research priorities.

 

By joining, you will:

  • advance the pace of CP research
  • help determine the important issues for people with CP by taking surveys
  • have the opportunity to participate in clinical research and trials
  • chat with other community members and researchers

Adult CP research

 

We will combine everyone’s responses to provide information about pain management, treatment options and barriers.

Adult survey information