Recent News

Enteral Nutrition

New, High-Quality Nutrition Product Now Eligible for Medicare and Medicaid Reimbursement

Congratulations to Myos Rens on this win!

Welcomed news for those who rely upon enteral nutrition for their dietary needs.  Those challenged with certain Cancers, Cerebral Palsy, Down Syndrome, Duchenne Muscular Dystrophy, Stroke, Traumatic Brain Injury and Ulcerative Colitis will gain health benefits and save money.

A double “W!”




Patient-Centered Research

Last summer,  CPNOW and CPRN were hosts of Research CP a comprehensive program to develop a patient-centered research agenda for the CP community.

The results are documented in a white paper published in Developmental Medicine and Child Neurology. You may freely share this publication.  Thus, please help us circulate these community priorities.

During June’s in-person workshop, twenty of the highest ranking unique ideas were further discussed and analyzed.

The top three research ideas (summarized):

1. Aging with CP

2. The best long-term exercise/strength training strategies for all levels of CP 

3. Evaluate which interventions (surgeries, injections, medications and therapies, orthotics, equipment and training) produce the best functional outcomes

Also noteworthy were participants’ emphasis on improved participation, lifespan research and long term studies.




More Research