Patient-Centered Research

Last summer,  CPNOW and CPRN were hosts of Research CP a comprehensive program to develop a patient-centered research agenda for the CP community.

The results are documented in a white paper published in Developmental Medicine and Child Neurology. You may freely share this publication.  Thus, please help us circulate these community priorities.

During June’s in-person workshop, twenty of the highest ranking unique ideas were further discussed and analyzed.

The top three research ideas (summarized):

1. Aging with CP

2. The best long-term exercise/strength training strategies for all levels of CP 

3. Evaluate which interventions (surgeries, injections, medications and therapies, orthotics, equipment and training) produce the best functional outcomes

Also noteworthy were participants’ emphasis on improved participation, lifespan research and long term studies.

 

 

 

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