Discovery for “high functioning” adults

C-spine stenosis
Dr. Joseph Dutkowsky with an adult patient

Some c-spine stenosis symptoms are pain/weakness in arms, shoulders or legs, and balance issues

 

In November of 2016, there was radiating pain in my arm.  My primary care physician was not available.  Therefore, the appointment was scheduled with his physician’s assistant.  She examined me, prescribed stretches and instructed that if the pain had not gotten better  when I came in for my annual physical, in January, to mention it.  At that time, the PCP ordered neck/shoulder x-rays. Upon calling for the results, the staff’s response was  “there’s nothing alarming” so the stretches continued along with my regular exercise routine.

About three months later, while gathering information for a consultation with Dr. Joseph Dutkowsky at the Weinberg Cerebral Palsy Center, a written report indicating narrowing of the cervical spine was discovered in the patient portal.  I know what”narrowing” means and planned to discuss it during the consultation.  Unfortunately, while enroute to see Dr. Joe, I fell for no apparent reason.  Broke my hip and landed in the emergency room. Thankfully, a replacement was not required, just pins.  During the conversation with Dr. Dutkowsky, he stated that many “high functioning” adults have cervical spinal stenosis.  Due to it’s slow progression, diagnosis is usually made once major symptoms occur.  At Dr. Dutkowsky’s direction, an MRI was done prior to my release from the hospital revealing stenosis.  There was a REASON for the fall after all.  This great man is lobbying for a cervical MRI to become routine for this demographic!

Long ago became content with my limitations, but refuse to quietly sit by and loose the abilities that are present!

Cerebral Palsy Research Registry

 

The primary mission of The Cerebral Palsy Research Registry is to improve the understanding of cerebral palsy. The founders believe that families and researchers can make a difference in the lives of people with cerebral palsy.

Cerebral Palsy Research Registry
JOIN

The registry, available nationwide, has the following goals:

  1. Keeping the registry as a secure database that connects interested families with researchers studying cerebral palsy.
  2. Using the registry to investigate surveillance data.  Examples include the natural aging process of persons with cerebral palsy, current interventions, environmental modifications and services utilized by persons with cerebral palsy.